Autism Awareness Day: The Overlooked Link to EDS & HSD

Autism is more than just a neurotype—it can also impact physical health in unexpected ways.

One growing area of research focuses on the strong link between autism and hypermobility conditions like Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD).

Studies estimate that 20-50% of autistic people experience joint hypermobility, compared to only 10-20% of the general population. Yet, many autistic individuals struggle with undiagnosed chronic pain, fatigue, and mobility challenges, often overlooked in medical settings. Recognizing this connection can lead to better diagnoses, accommodations, and quality of life.

Why Do Autism & EDS/HSD Overlap?

🧬 Genetic Factors

Both autism and EDS/HSD have hereditary components, and research suggests certain gene variations may impact connective tissue and neurodevelopment. Some scientists theorize that differences in collagen genes might influence both conditions.

🧠 Sensory & Motor Challenges

Autistic individuals often experience proprioception difficulties, sensory sensitivities, and motor coordination issues—all of which can be worsened by joint hypermobility. This may explain why many autistic people struggle with clumsiness, frequent injuries, and muscle fatigue.

💓 Autonomic Nervous System Dysregulation

Autistic individuals, as well as those with EDS/HSD, frequently experience dysautonomia, which can lead to:

• POTS (Postural Orthostatic Tachycardia Syndrome): dizziness, rapid heartbeat, and fainting when standing.

• Gastrointestinal issues: IBS, acid reflux, slow digestion.

• Temperature regulation problems: overheating or extreme cold sensitivity.

These systemic issues can exacerbate sensory overload, fatigue, and executive dysfunction in autistic individuals.

Managing Autism & Hypermobility Together

📌 Sensory-Friendly Movement Therapy – Standard physical therapy can be overwhelming for autistic individuals. Gentle, sensory-informed approaches (like the one ParaMotion Provide) can improve joint stability, coordination, and proprioception without overstimulating the nervous system.

📌 Pain & Fatigue Management – Lightweight bracing, compression gear, and deep pressure therapy can provide support while reducing sensory distress. Pacing activities can also help prevent crashes from chronic fatigue.

📌 Nervous System Regulation – Many autistic people with hypermobility struggle with dysautonomia (irregular heart rate, dizziness, and temperature regulation issues). Techniques like vagus nerve exercises, hydration, electrolytes, and breathwork can help stabilize the autonomic nervous system.

📌 Gastrointestinal Support – High rates of IBS, reflux, and food sensitivities in both conditions mean that dietary adjustments (e.g., fiber-rich foods, probiotics, and avoiding trigger foods) can be beneficial.

📌 Mental Health & Accommodations – Many autistic individuals with hypermobility struggle with anxiety, sensory overload, and executive dysfunction—so flexible routines, accommodations, and neurodiversity-affirming therapycan make a huge difference.

The Importance of Recognition & Diagnosis

📌 Many autistic individuals don’t realize that their chronic pain, fatigue, and mobility struggles could be linked to undiagnosed EDS/HSD. Because most doctors don’t screen for hypermobility in autistic individuals, this connection often goes unnoticed.

🔹 How to Advocate for Yourself:

• If you experience chronic pain, joint instability, or frequent dislocations, ask your doctor about hypermobility.

• Keep a symptom journal to track patterns in pain, fatigue, and sensory issues.

• Seek out medical professionals familiar with neurodivergence and connective tissue disorders.

  
  

Supplements & Nutritional Support

While individual needs vary, some people find these supplements beneficial for managing symptoms:

🔹 Vitamin C – Supports collagen production & connective tissue health.

🔹 Omega-3 Fatty Acids – May reduce inflammation and support brain function.

🔹 Magnesium – Helps with muscle relaxation, joint pain, and nervous system regulation.

⚠️ Always consult with a doctor before adding supplements!

How This Relates to the Larger Neurodiversity Movement

💙 Autism Awareness Day isn’t just about recognizing autism—it’s about advocating for better understanding and support.

• The medical system still operates under a neurotypical lens, meaning autistic individuals with physical health struggles are often dismissed.

• Recognizing autism’s connection to whole-body health challenges medical professionals to offer more holistic, neurodivergent-affirming care.

• When we expand autism awareness to include co-occurring conditions, we make the world more accessible for ALL autistic people.

  
  

Final Thought for Autism Awareness Day

💡 If you’re autistic and experience chronic pain, fatigue, joint issues, or dizziness, it’s worth exploring the connection between autism & hypermobility. Understanding this link can help you find better treatments, accommodations, and self-care strategies.

💙 Did you learn something new today? Help spread awareness by sharing your experiences below! 👇

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